So I have been getting a lot of questions as to what is going on with this little man. In all honesty I truly don’t know that is what we are trying to figure out. Ephriam has not made quite the progress in the past 6 months that he should have made. He has had a little back sliding, like calling grapes strawberries and the looking at me like I know they aren’t mom but what are they when I tell him no they aren’t strawberries. He also hasn’t been able to get remember his class mates names like he did last year and he is still having a hard time recognizing his name. To most people these may not seem to be big things but when you have already seen your child slide back once you don’t want to see it happen again. The school also feel like there is something else going on in his head and had requested that the doctor do an MRI to be sure there wasn’t. He teacher sent over his entire school folder to the doctor to give her a better grasp at to what was going on. I did notice when comparing his evaluations through standarized testing that he either scored the same or drop slightly against kids his age. So all of this has lead to an MRI of his brain. We are looking for a possible physical cause for all of this. It is scheduled for 8:30 this Friday morning. I know they got him in quick! Since Ephriam is unable to hold still for an hour they will have to sedate him, making the appointment 3 hours long. I asked what kind of sedation they would use and the person in the scheduling department said that she wasn’t sure but she thought they might us IV sedation. This then makes this a whole frightening experience for him. It is hard on him because no matter how I explain things he doesn’t understand. Yes is is worse on mom!
Now I know that I hadn’t mentioned to many people yet about Ephriam having seizures. It isn’t the type where he falls down and shakes all over. It is one that if you weren’t really looking for it that you wouldn’t even know it was happening. It is called and absent seizure. It is where Ephriam will just stop what he is doing stare off into space for about 30-60 seconds and then go right back to what he is doing. I had noticed this a few time but then it started to happen more frequently. Sometimes it is 3 times a day and sometimes never. I really thought that I was crazy because no one else had noticed it until his teacher today mentioned that his speech therapist at school had noticed them. As a matter of fact he did have one while I was typing this blog post out. He was taking a pillow to the living room and stopped in the hall way. I went to see what he was doing and called his name and nothing then he just started to take the pillow down the hall. This is the first one though that I have seen in almost a week. I mentioned them to his doctor and she ordered an EEG for when he is having frequent episodes.
As for now, his life is carrying on like is always has. He is going to school and receiving his speech, PT, and OT at school. He will be going to speech therapy on Monday. Right now he doesn’t know anything else that is going on. If you have any questions please feel free to ask. I will do my best to answer them. As much as possible I will keep you updated.
For now if you could just keep Ephriam in your prayers because I am not sure what effects all this is going to have on him. He is such a sweet loving boy and I couldn’t imagine not doing all that we are doing for him to get him the best help. We are so fortunate to live where we live and have access to the doctors and medicines that we have. He is God’s son and no one loves him more then God. So I am trying not to worry or be anxious about it because God has him in the palm of his hands.
I think that is it for now. Thanks to everyone for their concern and prayers it means a lot to me and my family.